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untitled story

Posted by anonymous at April 8, 2012
Tags: 2012 April  Health

I'm 25 years old. I'm a college graduate. I made As and Bs. I intended to be a counselor. It has been almost one year (July) since I was diagnosed with an auto immune disease. My immune system is attacking my brain. I am currently on medicine that hurts so bad to take. It leaves spots all over me. Every day I wake up and wiggle my toes just to make sure I still can. It's scary knowing you have a potentially debilitating disease that affects the most important things. My thinking, my legs, my arms, my sight, being able to swallow and breathe. I've had a relapse since my initial diagnosis. It wasn't my eyes like it had began with (optic neuritis) but it was my balance. I started getting vertigo and nausea. I've since recovered but I've been noticing patches on my foot that are numb. Not my whole foot... Just patches? This is so hard to talk about. My family and most of my friends are idiots and do not get it. They throw their sympathy at me like it's fucking confetti. I don't want it. I feel broken.

I use to cut myself so I have scars all over my body. I quit when I was a teenager. Now scars mean sobering much different to me. Since my diagnosis knowing that I have lesions (scars) on my brain and spinal cord makes me look at my arms and cringe. I'm full of scars.


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By anonymous at 09,Apr,12 09:09

Living with an autoimmune disease sucks. I know exactly how you feel. I, too, was diagnosed with ITP last year. a blood disease that makes your own antibodies attacking your platelets resulting from heavy bleeding, petechia etc. Every week my platelet count has to be monitored to avoid bleeding from inside the brain so i have to be on corticosteroid, a steroid that's so many adverse effects hence outweighting the benefits. I freak out when my platelet level goes way below 100 cause it could mean a long stay in the creepy hospital. Public Health insts. suck. Public Doctors are nigthmares. They don't give two shits about you and treat you like a doormat. Social workers are fucking cold-blooded mongrels who don't talk but shout when you speak to them. I hate where i live in. I hate my life. Sometimes, i wish i would just disappear like bubbles so noone would notice and talk about how my life fucken sucks. In your case, though, pls. continue on living even if it just means fighting and struggling to get through another day. Hang in, there.


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